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My son began the weekly social skills program run by Autism
Action a couple of months before his 5th birthday. He has a
diagnosis of Asperger's Syndrome and many sensory related issues.
He's also one cheeky, stubborn, questioning little boy! We had been
seeing a psychologist to help with his behavioral problems when it
came to interacting with other people, children in particular, as
he was quite aggressive and although he could tell you about
'social rules' he seemed unable to implement them in practice. His
kindergarten experience was extremely negative resulting in his
father and I withdrawing him from the program. Although we were
doing our own early intervention at home, we were in need of a peer
group for him, within a supportive framework.
When I heard about the social skills program run by Autism Auction,
I put my name down and spoke to the psychologist about it. She had
suggested we stop the sessions with her because my son was so
oppositional and 'silly' and nothing was being achieved--
essentially we were just wasting our money. The psychologist
suggested we give the social skills program a go, but that she felt
it probably wouldn't work with my son due to his extremely
stubborn, oppositional and defiant behavior and his tendency to hit
other children and throw things around and deliberately be silly.
To be honest, I agreed with her and felt that my challenging son
would be one of those "too hard" children.
Before the program began, I spoke on the phone with Sian and
Narelle, as well as exchanging email with a lot of background
information on my son.
I'm very well versed in Asperger's and have read extensively about
the conditions and behaviors my son has as well as various
strategies for early intervention, yet whenever I'd talk to a
professional I was treated as if I knew nothing, or worse, that I
was not doing anything to help my son in terms of early
intervention. You can imagine my relief when Sian and Narelle
listened to me and not once assumed I didn't have a clue. Even
more, they told me they would work with me and follow any cues I
thought best to give-- they definitely understood that I knew my
son best. I had previously experienced the opposite of that with
some professionals, who assumed to know my child better than I did
and as a result, give us advice and strategies which simply didn't
work and made matters worse.
I was extremely impressed with Sian and Narelle's willingness to
work with me instead of just telling me what to do and at the same
time I was more than happy to defer to them both and learn from
their experience. After talking to them, I began to feel a sense of
hope that my son would improve his problem behaviors because Sian
and Narelle really seemed to 'get it', even without me having met
them.
The first session went as expected, with my son being all over the
place, hitting, spitting, being oppositional and defiant (he gets
very overwhelmed and can react negatively, whether impulsively or
not). I was very impressed with the calm manner in which Sian,
Narelle and Biddy dealt with this. It took a few weeks for my son
to settle in, even though he'd still get a little worked up and
carried away for most of the sessions. Again, the staff were
wonderful with him.I also appreciate that Sian, Biddy and Narelle
will advise you on a 'better' way of handling a given
situation.
They do so in a supportive way, not in a way that makes you feel
stupid or incompetent. They fully understand what it is like for
parents of children on the spectrum and their compassionate
approach is one that I will always be thankful for. I felt
supported and listened to throughout the sessions.
The changes in my "too hard" son have been amazing. During one
session, the children were working in groups of three at a table,
discussing friendship. I was stunned to see my son willingly walk
to the table and sit with the other children and work
cooperatively, engaging beautifully when it came to sharing and
waiting his turn. At his kindergarten he would never have done
this, instead he would have upset the work of others, provoking
them, hitting them and so on. He was never able to work
cooperatively because there was no supportive environment, which in
turn escalated his behaviors.
My son also has very low self esteem and due to the treatment he
received at his kindergarten, he came away with the feeling that he
was 'bad', 'rude', 'and horrible’ (words that had been used to
describe him). I truly believe that the positive approaches used by
Autism Action have helped him increase his self esteem and
confidence, especially where friendships are concerned, and erase
some of the poor feelings he had about himself.
He had no friends, as he would quickly alienate other children with
his dominant, 'anti-social' behavior. He never received an
invitation to birthday parties or play dates. Parents in the park
would tell him he was a nasty little boy (he wanted to play with
the children but didn't understand the social rules involved and
that pushing a child over is not how you play).
Nobody saw him the way his family did, which is a delightful,
happy, bright little boy who just wants to have friends and be
liked. He would sometimes cry at home saying "I don't have any
friends because nobody likes me".
I'm sure there are people reading this who may have a similar
experience of being the parent of the child nobody wants to play
with. It creates a deeply sad place in your heart, especially when
you see that your child wants to have friends but nobody is willing
to give them a chance. So you can imagine how overjoyed I am now
that my son can interact more positively with other children. There
have been many occasions where he has run over to me at the park,
happily shouting "guess what Mummy! I just made a friend!" I have
seen him carry on conversations with children with no prompting
from me.
Autism Action have helped my son with these successes. People who
hadn't seen my son in a while all commented on how he has really
improved. He will be a 'work in progress' for some time to come but
Sian, Biddy and Narelle have been instrumental in helping him along
his way. Better yet, he has really enjoyed his time there and talks
of his friends :)
I will always be grateful to the wonderful, dedicated team at
Autism Action!
-FC Dec. 2009 |